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Advocacy and Benefits Counseling for Health

Advocacy and Benefits Counseling for Health is a Wisconsin-based nonprofit public interest law firm dedicated to ensuring health care access for children and families, particularly those with special needs or who are at risk. ABC for Health's mission is to provide health care consumers with the information, advocacy tools, legal services, and expert support they need to navigate through America's complex and confusing health care financing system. http://www.abcforhealth.org/


Family Village- A Global Community of Disability-Related Resources

Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide services and support.
Our community includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more! http://www.familyvillage.wisc.edu/


 
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  Family Voices of Wisconsin

Family Voices of Wisconsin is a statewide non-profit focused on supporting the voice of families in decision-making, leadership and systems change roles. FVW provides information, training and support around health care and community services to families throughout our state and supports essential partnerships between families and professionals. FVW's well received Did You Know? Now You Know! training series is offered statewide. http://wfv.org/fv

 
  Wisconsin First Step For Children with Special Needs

Wisconsin First Step is a statewide Information and Referral (I&R) hotline that serves families with children who have special health care needs and professionals. Wisconsin First Step has two components. It serves as the Central Directory for Wisconsin's Birth To 3 Program. This statewide program provides supports and services to infants and toddlers with developmental disabilities and their families. Another component to First Step is to serve as the I&R hotline for the Wisconsin Regional CYSHCN Centers. In addition to providing referrals to disability-related resources, Parent Specialists provide direct linkages to the closest Regional CYSHCN Center. A health and human services database of disability-related resources has been developed and is regularly updated. http://www.mch- hotlines.org/web/mch/home.nsf/Menu/F0384769EE9DBAB786256F3F0072826C!OpenDocument

 
  Great Lakes Intertribal Council's Children/Youth with Special Health Care Needs

The Great Lakes Inter-Tribal Council's Children/Youth with Special Health Care Needs (CYSHCN) Project is a program which assists in providing information, resources, professional support, advocacy, parental training/ education, social service coordination and assistance and aid in resolving specific concerns or needs regarding a child's disability to Native American families in Tribal communities in rural northern Wisconsin. The goal of the project is for each Native American child with a special health care need to obtain culturally appropriate health care service coordination, to include early identification, a complete developmental and medical assessment and to have access to primary health care services. http://www.glitc.org/pages/cwshcnp.html

 
  Wisconsin Regional Centers for Children and Youth with Special Health Care Needs (CYSHCN)

Wisconsin Regional Centers for Children and Youth with Special Health Care Needs (CYSHCN) provide a system of information, referral and follow-up services so all families of children and youth with special health care needs and providers have access to complete and accurate information. http://dhfs.wisconsin.gov/DPH_BFCH/cshcn/CntrsFrstStep.htm#Regional%20CSHCN%20Centers

 
 

Medical Home Toolkit
Building Medical Home Partnerships: Small Steps: Big Changes (Wisconsin Medical Home Toolkit)

Building a Medical Home Partnership: A Wisconsin Toolkit is a new Web-based resource for Wisconsin health care providers. The Toolkit shares the insights of a committed group of families, physicians and care coordinators who have been involved in a continuous quality improvement process to create family-centered care for children and youth with special health care needs. The Toolkit is a roadmap to the tested tools and practice strategies recommended by Medical Home Teams both nationally and here in Wisconsin. www.wimedicalhometoolkit.aap.org

   
   
 
Parent to Parent USA To find out about Parent to Parent programs in other states or to find out how to start a Parent to Parent program in your state go to www.p2pusa.org
PEAR (PARENTS EDUCATED ABOUT RESEARCH) Project
Children live happier, healthier, safer and more productives lives when their parents are strengthened, educated and supported.
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